Update: March 7th, 2025

Hey Everyone! 

I just completed my 4th week of infusions. I go once a week to Charleston to receive the Study drug infusion and then once every three weeks I also receive the immunotherapy infusion. While we are not told if I received the actual drug or the placebo for the Clinical Trial, all signs are pointing to me actually receiving the drug according to the side effects I have been having. So far those side effects have included: Acne-like rash breakouts all over my face, chest to stomach, head, and back, nose bleeds, gum bleeds, mouth blisters, and skin cuts (like paper cuts) all over my hands and fingers. Not fun side effects that's for sure, but if it cures the cancer, I can put up with all of that. Infusion days are super long. I'm there most days from 7:15am to anywhere from 4-6:30 pm. It's exhausting to say the least. I'm doing good otherwise though. Still on the feeding tube, but I was able to drink a milkshake ..still can't eat anything solid. As always, thank you for your continued prayers.

Love you all! 💗

-Amy 


"And we have known and believed the love that God hath to us. God is love; and he that dwelleth in love dwelleth in God, and God in him."

 -1 John   4:16 KJV

 

 

     

Comments

Post a Comment

Popular posts from this blog

Today is the Day

Image
 It’s about 1:30 am and of course I can’t sleep. Surgery begins in a few hours and is expected to last 12-14 hours. Still somewhat nervous but it’s nowhere near as nervous as I have been. I actually feel pretty calm for the most part. They ended up going ahead and admitting me around 7pm.  I probably will not be able to get back to anyone for a few, but I hope to see you all on the other side of this.  Love you all & thank you for the continued prayers for me & my family.  💗Amy   Isaiah 41:10 “ Fear thou not; for I am with thee: be not dismayed; for I am thy God: I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness.”  
Read more

Update 1/16/25

Hey y’all. First I would like to thank you all again for all of your prayers. I’ve said this many times before, but waiting to hear if your cancer has come back never gets any easier. In fact, I believe it gets harder every time.   They ended up just taking a biopsy of only the nodule in my chest (right above my collar bone). It breaks my heart again to share that it did come back as cancer. They are planning to do surgery in 2-3 weeks. In the meantime, they are going to also do an ultrasound of my thyroid nodule to see if there is concern and if a biopsy is needed there. As for the area in my tongue, they will likely take biopsies while I am under anesthesia for the surgery coming up. I don’t know why this keeps happening… I don’t know why it keeps coming back and spreading… but I have to believe that there is a greater reason for it. Please continue to pray. Love you all💗    Philippians 1:19:  “For I know that through your prayers  and God’s provision of the ...
Read more

Visit to MUSC

Image
We met the surgery team at MUSC for the first time yesterday. Still nothing concrete yet ; however, it's looking as though there will be another surgery to attempt clear margins, and also to maybe put in a muscle graft from another part of my body. This will require them to attach muscle vessels somewhere in my neck to get blood supply. Also, it is highly likely that I will have a trach for a while so that I can breathe properly. I may also have another feeding tube. The doctor indicates that those will hopefully be removed before discharge or shortly after. Again, this plan could change after review of my whole case. Right now, we are waiting on MRI results and also for the complete tumor board to review my case and come up with a final plan of action. Surgery will most likely not be for a few more weeks. This is going to be a long recovery...I may have to learn how to speak again, but their hope, as well as ours, is that the muscle they put in will help me be able to hopefully be...
Read more