Visit to MUSC

We met the surgery team at MUSC for the first time yesterday. Still nothing concrete yet; however, it's looking as though there will be another surgery to attempt clear margins, and also to maybe put in a muscle graft from another part of my body. This will require them to attach muscle vessels somewhere in my neck to get blood supply. Also, it is highly likely that I will have a trach for a while so that I can breathe properly. I may also have another feeding tube. The doctor indicates that those will hopefully be removed before discharge or shortly after. Again, this plan could change after review of my whole case.

Right now, we are waiting on MRI results and also for the complete tumor board to review my case and come up with a final plan of action. Surgery will most likely not be for a few more weeks.

This is going to be a long recovery...I may have to learn how to speak again, but their hope, as well as ours, is that the muscle they put in will help me be able to hopefully be able to talk still for the most part.

I can't really speak well at the moment which is very frustrating. I'm having to text things or write them out on paper...  People can't understand me, and I have a hard time getting words out. Some words here and there but the pain and swelling are too bad at this point. I'm mostly taking in very little soft foods...mostly shakes again. Man, I had hoped that I'd never have to drink another Ensure!

I really appreciate everyone reaching out and the prayers. I decided to do this a bit differently than last time and post on a blog that way it would keep the events in order. I know all of the crazy posts go out of order and this just seems more together...and also allows you the choice to click on the link if you want to read it instead of it being BAM in your face. Kind of helps me get everything out, which I'm trying as well. Everyone who knows me knows I'm a private person and don't like to share all of my business. But I do know that there are a lot of people out there praying for me and my family ...people that I don't even know. So this gives an update. 

Please keep the prayers coming! 

Love you all,

Amy 💗

Philippians 4:13 KJV:
"I can do all things through Christ which strengtheneth me."