Surgery Date Scheduled
We didn’t get home until around 8pm last night from Charleston so by then we had been going nonstop since 5am and were exhausted. My surgery date has been scheduled for Wednesday the 25th beginning 5am. They expect it will last all day.. so looking at probably 14-16 hours. Most of my tongue on that side that hadn’t already been.. will be cut out. They plan to take a muscle from my back and attach it and the vessels to an artery in my neck. They tell me I won’t be able to move it back and forth freely the other muscle in the part of my tongue that is left will just pull it along. It will be really swollen so for s while I will have a temporary trach placed so the ventilator can help me breathe and also a feeding tube for a while. We’re praying that both of those will be able to come out a few weeks after surgery. They said after surgery I will be in ICU for a few days while they monitor the transplant, then should be moved to a regular floor. I’ll pretty much be communicating by using a whiteboard as the doctor doesn’t want me to strain to try to talk for a bit. I’ll also have to work with Speech Therapy to learn how to swallow with the changes and work on my speech. Right now they won’t know until after surgery but it looks like it will be Chemo again and radiation again, but since I had such a difficult time with the radiation last time (bc it burns everything inside your mouth basically) they are also looking at possibly immunotherapy.
A few have asked me again about a GoFund Me so i’ll try and get one set up before the surgery for those who have asked. What I want mostly is your prayers and I know that many have been praying and I just want to thank everyone with all my heart.
For those who know me well know I love photography…
Fun Fact: for those who didn’t know .. the pictures of the Lighthouses hanging in my office were taken by yours truly.
I was able to snap some beautiful pictures yesterday in between and on the way to and from appointments. The ones from the car didn’t turn out that great but hey, still reminded me how beautiful of a creation that God made.
💗Amy
From the 10th floor Rutledge Tower ..
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