February 19th, 2025

 Good morning! I said I would do another update once treatment began, so here it is. This past Friday I had to be at MUSC at 7:15am for lab work. Then I had to see my doctor, who went over everything again with me. After that, I went down to the Infusion Center for my first immunotherapy treatment & first clinical trial treatment (I was approved for the clinical trial!). With the clinical trial treatment, it is what's called a "double-blind," which means that the doctors nor I know if I am receiving the actual drug or a placebo. However, I am for sure receiving the immunotherapy drug for sure. They told me that the first time or two would be longer because they have a set time period that they have to monitor me after the treatment to make sure that I don't have any initial adverse reactions to the drug. I didn't finish treatment and observation until a little after 4:30pm. It was an extremely long day to say the least! Then of course our drive home Charleston. Everything went well though and I am hopeful that this treatment will cease growth or even get rid of the cancer. All I can do is give it to God.

   I also wanted to mention that this past Thursday we were on our way to Charleston because I had to get another CT scan and lab work done. On the way there, a guy in a truck (normal sized) decided that he was going to make a u-turn in the center of HWY 17 to come on to our side of the road. He didn't see us, ran us partially off the road and hit us in the side. I am very thankful to the good Lord that neither myself, Matt, or the other driver were injured, and my car has damage that can be repaired. It could have been so much worse, and I'm so thankful it wasn't.

   I go back to MUSC for treatments once a week. Thank you for all of your thoughts & prayers. I'm constantly amazed at the outpouring of love and generosity that y'all have shown us. 

Love you all. 💗

=Amy


"Peace I leave with you, my peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled, neither let it be afraid."  
-John 14:27 KJV

 

 

 

 

Comments

Post a Comment

Popular posts from this blog

Today is the Day

Image
 It’s about 1:30 am and of course I can’t sleep. Surgery begins in a few hours and is expected to last 12-14 hours. Still somewhat nervous but it’s nowhere near as nervous as I have been. I actually feel pretty calm for the most part. They ended up going ahead and admitting me around 7pm.  I probably will not be able to get back to anyone for a few, but I hope to see you all on the other side of this.  Love you all & thank you for the continued prayers for me & my family.  💗Amy   Isaiah 41:10 “ Fear thou not; for I am with thee: be not dismayed; for I am thy God: I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness.”  
Read more

Update 1/16/25

Hey y’all. First I would like to thank you all again for all of your prayers. I’ve said this many times before, but waiting to hear if your cancer has come back never gets any easier. In fact, I believe it gets harder every time.   They ended up just taking a biopsy of only the nodule in my chest (right above my collar bone). It breaks my heart again to share that it did come back as cancer. They are planning to do surgery in 2-3 weeks. In the meantime, they are going to also do an ultrasound of my thyroid nodule to see if there is concern and if a biopsy is needed there. As for the area in my tongue, they will likely take biopsies while I am under anesthesia for the surgery coming up. I don’t know why this keeps happening… I don’t know why it keeps coming back and spreading… but I have to believe that there is a greater reason for it. Please continue to pray. Love you all💗    Philippians 1:19:  “For I know that through your prayers  and God’s provision of the ...
Read more

Visit to MUSC

Image
We met the surgery team at MUSC for the first time yesterday. Still nothing concrete yet ; however, it's looking as though there will be another surgery to attempt clear margins, and also to maybe put in a muscle graft from another part of my body. This will require them to attach muscle vessels somewhere in my neck to get blood supply. Also, it is highly likely that I will have a trach for a while so that I can breathe properly. I may also have another feeding tube. The doctor indicates that those will hopefully be removed before discharge or shortly after. Again, this plan could change after review of my whole case. Right now, we are waiting on MRI results and also for the complete tumor board to review my case and come up with a final plan of action. Surgery will most likely not be for a few more weeks. This is going to be a long recovery...I may have to learn how to speak again, but their hope, as well as ours, is that the muscle they put in will help me be able to hopefully be...
Read more